Publication: Assessment of Health-Related Quality of Life and its Associated Factors in Family Caregivers of Children with Lymphoma at a National Hospital in Central Malawi
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2023-01
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International Journal of Medicine and Public Health
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Abstract
Background: The health-related quality of life (HRQoL) HRQoL continues to be understudied
among family caregivers with chronically ill children especially in developing countries like
Malawi. Aim: This study aimed to assess health-related quality of life and determine the socio-
demographic factors associated with the health-related quality of life of caregivers of children
with lymphoma at a referral hospital in Malawi. Materials and Methods: A cross-sectional
study was carried out at a referral hospital in Malawi, and 107 caregivers were recruited. The
Medical Outcomes Study Questionnaire 36-Item Short Form was used to collect data which
were analysed using SPSS Version 25. Results: All 107 targeted participants were assessed.
Both the physical health component and the mental health component mean scores were low
(M=50.63, SD=11.86 and M=45.51, SD=11.95, respectively). Time since diagnosis of the child’s
cancer accounted for significant differences in both the physical and mental health components’
mean scores (F(2, 104)=5.030, p=0.002 and F(2, 104)=5.030, p=0.006, respectively). The
caregivers >41years old, those who were married, those who were employed, and caregivers
whose children were diagnosed >12 months were among those more likely to report a better
physical health perception compared to those without these characteristics. Conclusion: The
health-related quality of life of the caregivers at the referral hospital was severely impaired. The
findings suggest that caregivers of children with lymphoma have the potential to develop more
serious mental and physical health problems; hence, interventions to mitigate the burden of
caring for children with lymphoma are needed